Thalassemia Thi Pidit Patient ROSHANI SURESHBHAI SAGATHIYA
Ne O+ Blood Aapta SHREE JAYESHBHAI KADCHHA No
KESARI CLUB Amreli vati Abhar 🙏🏻🙏🏻🙏🏻
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Thalassemia Thi Pidit Patient HIRAL LALABHAI TRAD Ne A+ Blood aapta Shree VIVEKBHAI BORISAGAR Ne Abharvandna Mate Sheetal Ice-cream Tarafthi KESARI CLUB Dwara Gift Apai.
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Thalassemia Thi Pidit Patient
ROSHANI SURESHBHAI SAGATHIYA
Ne O+ Blood Aapta SHREE JAYESHBHAI KADCHHA No
KESARI CLUB Amreli Vati Abhar 🙏🏻🙏🏻🙏🏻
Click Here to See More Pictures

Raise Your Helping Hand – Kesari Club Amreli

What is Thalassemia

Thalassemia is an inherited (i.e., passed from parents to children through genes) blood disorder caused when the body doesn’t make enough of a protein called haemoglobin, an important part of red blood cells. When there isn’t enough haemoglobin, the body’s red blood cells don’t function properly and they last shorter periods of time, so there are fewer healthy red blood cells travelling in the bloodstream. Red blood cells carry oxygen to all the cells of the body. Oxygen is a sort of food that cells use to function. When there are not enough healthy red blood cells, there is also not enough oxygen delivered to all the other cells of the body, which may cause a person to feel tired, weak or short of breath. This is a condition called anaemia. People with thalassemia may have mild or severe anaemia. Severe anaemia can damage organs and lead to death.

Thalassemia

Types Of Thalassemia

Alpha Thalassemia:

The alpha thalassemia is caused by a decrease in production of alpha globin chains due to a deletion or mutation of one or more of the four alpha globin genes located on chromosome 16. Alpha gene mapping can be obtained to determine the specific mutation. The alpha thalassemia can be generally categorized as:

    Silent Carrier
   Alpha Thalassemia Trait
   Hemoglobin H disease
   Hemoglobin H-Constant Spring
  Alpha Thalassemia major

Alpha Thalassemia trait in a parent is often discovered after the birth of an effective child.

  • Minor/carrier/trait : They appear perfectly healthy, however where two carriers decide a family there is one in four chance that their child could inherit their carrier genes and develop Beta Thalassemia Major, one in four of a child being normal and 50% chance of the child also being a carrier.
  • Thalassemia Intermedia : A clinical expression for a condition between Carrier and Major .They often run a hemoglobin of 7-9 g/dL. They need transfusions only at times as their Hb drops with infection or any stress on the body. Especially during pregnancy or leg ulcers(seen with chronic hemolytic anemias ).
  • Thalassemia Major :  In Thalassaemia major, red blood cells are destroyed almost as soon as they are produced and the bone marrow cannot produce a sufficient number to replace them. This condition requires intensive medical care, including 2-3 weekly transfusions, Iron chelation therapy by giving desferrioxamine injections or by giving oral chelators. For many years, it was thought that Thalassemia major patients were untreatable and would inevitably die at an early age. We now know however , that with proper treatment , patients can lead full and fulfilling lives.

Goal

Stop Thalassemia

  • To campaign for blood collection for Thalassemic patients.
  • To counsel & educate thalassemics, their families & doctors on the management of Thalassemia.
  • To create better transfusion & treatment facilities.
  • To collect funds, equipments, medicines for underprivileged thalassemic patients.
  • To create awareness among public & facilitate screening and prevention programmes for control of Thalassemia.
  • To promote collaboration with State & Central Governments, W.H.O., Thalassemia Centres in India, Thalassemia International Federation, Hospitals & other NGO’s.

Organizing Blood Donation Camps

Nobody can do everything, But everyone can do something. Donate Blood!!

Thalassemia Major patients need regular blood transfusion for survival. Thalassemics India requests you to organize blood donation camps in your locality/area/or your organization.Your efforts can make a huge difference in somebody’s life.

If you like to organize a blood donation camp, please fill in the below details.

Donate Blood Save Lives